I hear and relate. I feel guilty about dissing the relative, who is worried about me being alone and is only trying to help me; most of what needs to be done is on me. I'm trying to get out of my little cave but I'm so out of touch now. I didn't know Roni, but elizabuff was so kind to me and I had no idea until I saw the posts earlier this week.
ulcerative colitis is like chron's disease but not as bad. I have psoriasis on my scalp so scratching at it is how I got the first one but the second one and this one are infected hair follicles! don't know how that happens so i'm supposed to make an appointment with an infectious disease specialist so they can figure out why it keeps happening. I am immunosuppressed because I get a medication called Remicade that suppresses my immune system on purpose because that's how they control the ulcerative colitis and the ankylosing spondylitis and actually the psoriasis too(although I just have it really mild since it's just on my scalp). so i'm more susceptible (wow, spelled that right! do I get a treat?) to infections that most people.
*hip bonks from dusty* good to know you're at least hanging in there :) i'm pretty much there too between my ulcerative colitis, ankylosing spondylitis, and dang migraines. now I've got for the 3rd time in about 4 months an infection on the back of my head. last time it was MRSA. I went to the doctor today to find out if it was an infection there because I can't see it in the mirror. I try and end up making myself dizzy holding my hair up with one hand, a hand mirror with the other and turning back and forth trying to figure out how to see it behind me in the mirror and I never end up being able to see it anyway. so, last time it was MRSA and they didn't call and tell me until 10 days after they did the culture which is ridiculous because unless they were sending messages by carrier pigeon, culture results take 48-72 hours. they didn't bother culturing it today and just put me on the same treatment I was on last time plus gave me a prescription for clindamycin and said if it doesn't improve or it gets worse to take those. a very broad, make my own decision to take the medication or not, sort of statement which I think if I wasn't a RN would be scary to leave that decision for some everyday people that walk around. some of them are not so bright
Thanks, that's a big help. I meant to say, I'm sorry about the c diff, that's evil stuff. I hear it takes a while to get your strength back. As for me, I'm (too) slowly getting to the point where self-disgust will translate into action. It's been a year and a half, isn't there something wrong with still feeling like this?
I use Outlook too, now I know I need to find something else before I switch to Windows 8. I bought a PC on deep discount but can't get motivated to set it up. FWIW, I sent the pix to your Gmail account.
Okay... my account was messed up a while back and I couldn't tell if I'd answered a couple of your emails. BTW, I followed the link you posted here and read the interview, great stuff and congrats. I didn't know about the trigeminal neuralgia, I looked it up and I'm so sorry you have such a heavy burden on top of everything else. ((hugs))
You are NOT lousy! I felt bad that I hadn't known and said anything about Elizabuff earlier. Also so sorry about Roni even if she was not technically a cheezfrend, though I feel she was in LOL spirit. thanks again!
no problem...as long as the power holds up....if it goes so goes my TimeWarner cable Internet....My iPad is on cellular with Verizon which may/or may not hold up in a power outage BUT which I will have no way to recharge once the battery goes because stupee me didn't get one of those things to emergency recharge it during a power outage....
we have huge hurricane-like flash lights battery powered...and sleeping bags rated for -20 that we hunkered under during Sandy storm....I used the big double one as a tent....I actually have a tent but hesitate to set it up until needed because it takes up a large part of the passage within the apartment.